2022-02-23 15:00Press release

Racing for a Cure 2022

A rare disease diagnosis forever alters your view on life, priorities and relationships. It is at these hardest moments that your true friends emerge to stand by your side and join you in the struggles and triumphs. 

Sean Cooper is a close friend who has embraced our situation and partnered with us to work towards a better future for Silas. 

Sean is a Dixon, IL native who currently resides in Chicago. An avid runner and soccer player, he has used his relentless stamina to run races for Angelman Syndrome awareness and raise funds for research and therapeutics. In 2018, Sean traveled to Nashville and ran his first marathon, raising around $10,000 for Foundation for Angelman Syndrome Therapeutics (FAST). In 2022 he is at it again! His lightning speed has qualified him for the prestigious Boston Marathon on April 18th and he will once again be raising money for FAST. Sean is putting his body on the line for Silas and Angelman Syndrome, and we could not be more appreciative. Follow the link below to donate to his goal of $15,000 and keep up with his training!





About Team Silas Hommes

Silas is four years old and was diagnosed with Angelman Syndrome three years ago. This is a rare neurogenetic disorder caused by a random deletion on his 15th chromosome. Angelman Syndrome causes global developmental delay, lack of speech, poor coordination and movement, and seizures. We raise funds for the Angelman Syndrome Foundation which is directly funding research, therapeutics, and clinics. One hundred percent of the funds Team Silas raises go directly towards this organization and mission.