As another Boston Marathon is in the books today, it is a fitting time to shine the spotlight on our good friend Sean Cooper and remember his impressive performance in 2022 running for Team Silas. Sean not only qualified to run the Boston Marathon, but then completed it in 3:03 and raised over $15,400 for Foundation for Angelman Syndrome Therapeutics (FAST). I was lucky enought to attend the race and cheer on Sean as he crossed the finish line. Please make sure to check out the attached photos and congratulate Sean on last years achievements and his dedication to Silas and Angelman Syndrome.
Silas is six-years-old and was diagnosed with Angelman Syndrome four years ago. This is a rare neurogenetic disorder caused by a random deletion on his 15th chromosome. Angelman Syndrome causes global developmental delay, lack of speech, poor coordination and movement, and seizures. We raise funds for the Angelman Syndrome Foundation which is directly funding research, therapeutics, and clinics. One hundred percent of the funds Team Silas raises go directly towards this organization and mission.